I want to thank everyone for all your support during this trying time. I wasn’t going to post today, but… It seems that at least in this realm there truly is a sense of like-mindedness and community facilitated through all our silly little blogs. It is comforting to know that people are thinking and about us and sending positive vibes our direction. Even Brooklyn Vegan showed me some love today when we really needed it. Tim Young also posted the awesome second installment of the Contrast Podcast featuring a selection from yours truly.
Now for the update since I’ve managed to make it to a computer. As previously mentioned, my daughter was admitted to the hospital this past Tuesday and had (in total) four seizures. Many tests were done and extremely serious things like bacterial meningitis (the spinal tap was clear) or neurological disorders (the MRI and EEG were normal) were basically ruled out, but no root cause has yet been discovered. Frustrating but not totally unexpected. While seizures in children are not all that commonplace, when they do occur they are very frequently idiopathic (having no known cause).
At this point in time, we (as well as the neurologist we spoke with and the primary care doctors) believe that my daughter’s seizures were most likely caused by the same bacterial or viral infection that is responsible for her ongoing illness. We are just waiting for a few more test results to see if we can determine what is making her sick. Regardless, though, at this point we are optimistic that this has just been a once-in-a-lifetime episode and will not happen again. Things are looking up and she should (most likely) be on her way home tomorrow.
Again, thank you all so much for all the kind words. If any of you get the chance, send some of those words in the direction of my wife (leave a comment there) who is still at the hospital right now and has been through so much the past few days.
Good to hear things are getting better. I hope you and your wife get a chance to rest–you two must be exhausted!
My thoughts go out to you
I think there is nothing in the world harder than waiting to find out if your child is “ok”. I’m sorry you have to go through this, I hope it all turns out ok. Your daughter is so precious.
omg! i just looked at your page today! i’m sorry i didn’t know…
i’ll send wife an email, but i reaaaaaally hope everything’s ok with you guys. i’ll keep you in my thoughts.
Keep doing what yr doing E, stand strong and this will be behind you all soon.
Cheers,
JT.
So I was going to come make some snarky comment about you and the Clash and how you should stay out of Durham, but then as a mom your recent posts made me get teary and I just want to say that I hope your daughter is doing a lot better today. I know that seizures can be common with fever in babies, but man alive, as a parent that doesn’t make it any easier to take. You guys are in my prayers.
I have been out of town all week so I had no idea what was going on!! I am so sorry you guys! I will definitely be praying for hailey.
As a new dad of a daughter right around the same age as yours I can only imagine how hard this must be for all of you. I hope all turns out well and that everyone can get back home and back to the normal routine of smiling, spitting up, grabbing things and drooling. That’s much more fun.
I’m thinking about you, amy, and hailey.
I’m glad to hear that things are looking up!
thank God things are getting better and my best to you, Mom, and the little one!
Wrap some more love around that baby.